CTBLN will be holding its next Accommodations Series Meeting on Friday, March 3, 2017 from 9:00 a.m. to 11:00 a.m. on Accommodating Individuals with Parkinson’s Disease and Other Movement Disorders. We will be meeting at Eversource, 107 Selden Street, Berlin, CT.
Admission is $10.00 for members and $15.00 for those who have not yet joined CTBLN. Please note: State of Connecticut employees receive free admission.
To RSVP please contact Sharon Denson at firstname.lastname@example.org or at 860-561-1232. We look forward to seeing you.
In the past, Parkinson’s Disease was considered a disease which primarily affected individuals in their retirement years. We now know that Parkinson’s Disease can be acquired during an individual’s prime working years. How do we accommodate our valued employees who have contracted Parkinson’s Disease? We are fortunate to get answers to this question from our speaker, Steve DeWitt, founder and Chief Executive Officer of the Connecticut Advocates for Parkinson’s (CAP). Steve is the recipient of several awards for his advocacy on behalf of individuals with Parkinson’s Disease including being honored as a Champion for Change at the White House in 2015.
We will also hear from CTBLN’s Executive Director, Sharon Denson, who lives with an Orthostatic Tremor. She will discuss how other movement disorders differ from Parkinson’s Disease and how we, as employers can understand these disorders and accommodate individuals who live with non-Parkinson’s movement disorders.
We are so excited about the reception we have received for our Accommodations Series. The popularity of these meetings confirm CTBLN’s belief in our members’ commitment to disability inclusion in the workplace. Thank you.
Steve DeWitt Bio:
Steven D. DeWitte , RNG
Steven DeWitte is the founder and Chief Executive Officer of the Connecticut Advocates for Parkinson’s (CAP). CAP began as a Support Group for People with Parkinson’s (PWP) who were defined as Young On Set, or diagnosed prior to the age of 50. Steve was diagnosed with Parkinson’s disease in March 2005 at the age of 48. Since inception in 2006, CAP has grown from eight members, to three chapters and over 130 active constituents. CAP filed for 501C3 status in 2011, and with Co-Chair Michelle Hespeler and a team of “Believers”, the organization has developed national recognition for support of research, education, advocacy, and quality of life initiatives. Steve is also credited with the formation of the Make A Difference Parkinson Alliance (MADPA), which brought the three largest Support Groups in Connecticut together to provide enhanced Educational Programs and unified Advocacy Voice to its over 300 members. Steve serves in an advisory role for such organizations as the Parkinson’s Movement NA,, and the Michael J. Fox Foundation. He served as an Ambassador for the World Parkinson Congress in 2013, and was a graduate of the 2008 PAIR (Parkinson’s Advocates In Research) Program presented by the Parkinson’s Disease Foundation. He was selected to serve as Patient Advocate at the 2013 DIA 50th Annual Meeting through the Patient Advocate Fellowship Program. He is credited with developing the Clinical Trial Transportation Program (CTTP), which has provided nearly 100 volunteers for Parkinson’s Clinical Studies, with the assistance of MADPA.
In March 2015, he was recognized as a Champion of Change at The White House (https://www.whitehouse.gov/champions/parkinson’s-disease/steve-dewitte-). He accepted an appointment to the Editorial Board of the Parkinson’s Journal in June 2015. He is often asked to speak on the subject or Patient Engagement and Clinical Trial Patient Recruitment and Retention Practices. He has accepted invitations to speak to the National Institute of Health (NIH), the Federal Drug Agency (FDA) and the VanAndel Institute. He is serving as an Advisor to Dr. Bas Bloem (http://www.wfneurology.org/bloem-bastiaan) of the Radboud University Nijmegen Medical Centre, the Netherlands in support of the ParkinsonNet Program’s entry into the US.
Steve was recently selected to be the co-recipient of the 2017 Alan Bonander Humanitarian Award presented by the Parkinson’s Alliance to individuals who selflessly devoted time to patient advocacy through research and direct interaction with physicians. http://www.unitywalk.org/bonander.php#sthash.QQA0mfYb.xRwP2dnp.dpuf